Thursday, June 25, 2009


I don't want to sound paranoid, I'm not that concerned about it at this point, but I wanted to write it down.

Last Saturday at a social gathering Barrett exercised such great self-control for the most part. I was very proud of him. He was hovering over the cookies and cheese crackers with such longing, but he would just look up at me and say, "Those will make you sick." However, you can only expect so much self-control for a two year old. After about 30 minutes he snuck under the table and was eating the crumbs of some smashed cheese crackers.

We saw the usual contamination symptoms: stomach ache, diarrhea, diaper rash (his poor swollen legs!), runny nose/cough, bloating, meltdowns, etc. But I also noticed times when he would just stare off into space an appear not to be aware of anything for several seconds. Then he would just go on as if nothing had interrupted what he was doing. Just yesterday he had been crying because he got a sliver in his foot. My husband was holding him and then he just stopped for several seconds and was staring into space. I was snapping my fingers right in front of his eyes and he wouldn't blink or anything.

I don't want to jump to the conclusion that these are seizures, but the certainly could be. It's something that I am going to watch closely and keep in mind though. I'm not sure if there is a link between that and celiac or not. If anyone knows anything about it though, please comment! (It only seems to happen if he is contaminated).


  1. Sounds like it might be what is called a petit mal seizure. Because it has happened more than once I think it's probably worth calling your doctor about. I don't know if it's linked to celiac, but anything that makes him unresponsive needs to be addressed.

  2. I am a friend of Jessica Myrup and she told me about your blog. My son is going through the same things your son is. He was just diagnosed with a mild autism and they are testing him on thursday with an EEG. Our Neurologist wanted to get the EEG because Trevor is spacing out as well. From what I know is that gluten and casein make the autistic symptoms worse. I am not sure if your son is autistic, but our kids have the same symptoms with the gluten and casein. I would do an EEG just to put your mind at ease. If your son is having petit mal seizures then there is medication to help. They sedate your child and put 80 sensors on his head and test his brain to see if there are any seizures. Then it takes a few days to hear back from the neurologist on the results. I will let you know what we find out.
    Andrea Saunders

  3. Yeah, let me know how it goes. I highly doubt he has autism. He's about the most social kid I know and has excellent language skills. I don't think I would medicate him for seizures either because it only appears to happen if he has eaten gluten or casein, which he rarely does. I'm real hesitant to use most medications so it would only be a last resort.

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